by GRACE MOEN – Content Writer for Health 2.0 covering news, trends, and reflections.
Openness is kind of old news. Finally. From startups to unicorns, open data is no longer a hot new idea approached with awe and ruffled feathers, but a standard of operating. Even so, it isn’t yet ubiquitously adopted. Ultimately the motivation behind allowing data to flow freely is to co-develop the kind of thriving future that open data and interoperability can provide. This means informed diagnosis, decreased costs, and better resources for more people, for instance. Former US CTO Todd Park said, “Data by itself is useless. Data is only useful if you apply it.” And apply it we will. But only after we open it up. And standardize it. And….
If you’re familiar with the 5 Drivers of a Decentralized Future that Matthew and Indu have been espousing for the last year, there is a reason Interoperability is listed as Driver #1 – interoperability lays the groundwork for the other 4 drivers to exist. Interoperability is likewise contingent upon a system in which data moves freely and openly. “If your business model is based on owning or controlling access to data, this is pretty threatening because it (Blockchain) cuts out middlemen and pushes power to the edges of the network.” One to one data sharing isn’t useful, but a living system that responses to new information as it flows in and out would be.
Indu Subaiya has described the future of data sharing in healthcare as akin to that of a cell membrane, semi-permeable and un-siloed.
A Moral Stance
If we are to deliver care to the people who need it most, if we’re going to increase quality while we decrease cost, then we’re going to need more information. Even with the best intentions, no (hu)man is an island which is why we invented Machine Learning to help us out. The data patterns technology can discover are endless and often reveal underlying causes to murky symptoms and life threatening illnesses. Data saves lives. I would argue that a commitment to open data sharing is not only a selfless act, but also an act of social good. It is morally right. Not ethically, which refers to a set of external rules found in workplaces or religion for example. I mean morals – your internal compass of what is right and what is wrong. Providing quality healthcare, that won’t break the bank, to all people is the right thing to do. “Providers must embrace collaboration for the common good” says Stanley Huff, CMIO of Intermountain Healthcare. From Patients to Providers, to Public Health initiatives and Payers, when data is open and free flowing every experience with the healthcare system advances to the next level. This is the baseline ethos from which all other technologies and services should build from.
“Get your ego out of the way and share the data!” – Joe Biden
Where It Matters
The greatest opportunities for impact occur in four big areas…
I’m reminded of what Mark Ganz said during his keynote address at Health 2.0’s WinterTech conference during JP Morgan week last month, “we ought to spend more time focusing on why we’re in it and who we’re in it for.” That’s right. Ultimately we’re in it for ourselves, for our children, for our grandchildren. For each other. For the future.
Allscripts has been leading the charge in API adoption for some years now with their plug and play-like platform that developers can build new technologies and applications on top of. Not to be outdone, Epic opened up their API in 2017, thus signalling a refusal to be made obsolete by the more nimble and comparatively newer players.
The advent of FHIR and SMART on FHIR has also been a huge game changer. “FHIR (Fast Healthcare Interoperability Resources – a next-generation standards framework created by HL7) is radically changing the way we think about integration of innovative applications, making them faster, easier, and less disruptive to workflow. It allows developers to create medical applications which can be easily integrated into existing systems. SMART on FHIR is a related utility which allows web apps to run inside a browser so clinicians can use them without leaving the EMR environment.” – Matthew Holt and Indu Subaiya.
As much as I’d like to sit on my high horse and preach that open data is 1000% fail-proof, it’s not entirely true. Equifax famously took a major hit for their breach in privacy of consumer data. And there are the skeptics – that slice of the American population who are hypervigilant about personal data protection. And they’re not totally wrong. Should consumers blindly trust technology? Or should technology be built to be trustworthy? It’s not as chicken-and-egg as it may seem… I propose that it must start with the technology. Consumers have been burned and like in any relationship when trust has been broken it will not only take time, but also a rigorous and consistent effort moving forward. Transparency and anonymity is appreciated: how the data will be used and where, and this should be communicated often and in layman’s terms. Consumer trust is earned, not guaranteed.
Remember the 5 Drivers of a Decentralized Future I mentioned earlier? Let’s talk about the other four.
The barriers to interoperability are great. Far more numerous in fact than what we have time to cover here, but it starts with a common agreement and belief that data should be free, it should be open, and it should move freely. The barriers will continue to be great, too great in fact, unless we take a moment as Mark Ganz suggests to remind ourselves why we’re in it and who we’re in it for: each other.
Health 2.0 and HIMSS are hosting their first ever Dev4Health conference, April 30- May 1, 2018 in Cleveland, Ohio. Dev4Health was created by innovators for innovators to share and accelerate new ideas in healthcare. Developers and tech enthusiasts, get your tickets today!